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The Worst Thing About Mercury Poisoning

January 14, 2011

I love to read. And of course my favorite genre is the medical memoir. Give me a story about someone who overcomes an obscure and hideous condition like Ewing’s sarcoma or losing part of their brain in an accident, and I’m hooked. I love these stories because I’m an overcomer too.

The hideous condition I overcame was mercury poisoning. It was caused by the amalgam fillings in my teeth. Not a lot of people know that dental fillings can cause mercury poisoning in certain sensitive individuals. I certainly didn’t know it when I got my fillings placed as a teenager, and I only had a vague inkling of it when I had those fillings removed in my 30s. It was only in the year following amalgam removal, when my health started to circle the drain, that I learned exactly how much havoc amalgam fillings can cause.

In the larger scheme of things, I count myself as one of the lucky victims of mercury poisoning.  My symptoms started to get bad, and only a few months later I found the frequent dose chelation protocol that slowly brought about my full recovery. It wasn’t easy, it wasn’t quick, but I found it when I needed it, and it worked.

If you’ve lived through it, you know how awful mercury poisoning can be, awful in more ways than I can possibly list in one post. (In fact, I think I’ll write a series of posts titled “the worst thing…”) But today, looking back at this whole experience, the worst thing about it was this:

Most people don’t know anything about mercury poisoning.

What this meant for me in my everyday life was that I was terribly sick, but didn’t have an easily-recognizable label to present to people to explain my condition. It would have been a lot easier if I could say “I have cancer” or “I have diabetes.” These are labels that people can work with. “I have mercury poisoning” is a statement that means nothing to most people and needs a lot of follow-up explanation, or worse, they hear it and it conjures up images of fringey hypochondria.

As one of my girlfriend’s friends bluntly put it when presented with the news that I had to break another dinner engagement because I wasn’t well:

“Yeah, I know. Your girlfriend can’t make it because she’s a freak.”

Being so sick was terrible, but the isolation of being that “freak” with mercury poisoning made it so much worse. There was technical information out there, good information that showed me how to beat mercury and get better, but that was only part of what I needed. I needed to connect with people who had come out the other side of what I was going through. I needed to go to a frequent dose chelation support group. I needed to read the four or five medical memoirs written by people who had gone through what I was facing. But of course those groups and memoirs did not exist, I was on my own.

And that’s what motivated me to create this blog. That’s why I’m writing a book about my experience of frequent dose chelation. I’ve made a full recovery from mercury poisoning, but I know that some of you reading this post are just starting out. I know what a godsend a blog like this would have been for me three years ago, and that’s why I’m offering it to you. While I work on that medical memoir about frequent dose chelation, I’ll drop in here and talk about whatever comes up as I work. It won’t be pretty. It won’t be polished and processed. But I think it might be something that could help melt the isolation a little, and let you feel like less of a “freak”.

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15 Comments leave one →
  1. Erin permalink
    January 15, 2011 11:42 pm

    I had no idea that amalgam fillings could cause poisoning…but thanks for sharing!

    • Jessica permalink
      January 20, 2011 10:01 pm

      And Erin, it won’t just effect you, it will effect your children, and their children. Toxicities like these travel through three generations and they are bio-accumulative. This is where the “genetic” autism starts.

  2. LLP permalink
    January 31, 2011 9:55 pm

    Thank you!! I have never felt so alone and isolated in my life!! Reading your works made me feel like I was talking with a friend…someone who understands! WOW! I felt what you felt. I think tonight, I can sleep:)

  3. LLP permalink
    February 16, 2011 3:01 pm

    Aine,

    I can’t thank you enough for your blog. Sharing your story as openly and honestly as you have has been so very theraputic for me. I just learned about the root cause of my crazy health problems and experienced much of what you described. The isolation has been so hard for me. I live alone, lost my job and most of my friend over the past few years. My best friend died of cancer and most of the rest just got tired of me being sick all the time. I have come back to your site many times and read and reread your story. It’s been a real comfort.

    I have four teeth left to fix…two will be pulled as no root canals for me and two more crowns then I start the chelation. I followed your advice and got Andy’s book and read the Freq. Chelators Group daily. I’ve learned a lot and have promised myself to start slow and see how it goes. I just need to get back to work for money and to be around people but an nervous about how I’ll be. I don’t want to alienate new coworkers right off the bat!

    Thank you again for your courage and sensitivity to share. I’m so happy you are healthy and that gives me hope as well:)

    Gina

    • February 16, 2011 5:38 pm

      Gina,

      I’m glad you got plugged in at the Frequent Dose Chelation group. Those folks will take care of you – the moderators there are truly stellar.

      And as for your comments about the isolation: all I can say is, Yes. I know. Yes, I have been there.

      For me, the isolation went beyond the fact that I was spending so much time alone at home sick. It was like the mercury had eroded my ability to connect with others. Like the bubble of aloneness was inside my skin, so that even if I was around people, I couldn’t get across the gulf and meaningfully connect.

      Whenever I try to describe things like this, it comes out sounding like sci-fi: “The mercury went into my brain, and then I was in my body in this space-time continuum, but my inner being was slightly out of sync with what you normal people would call communication and reality…” It sounds crackers, but God help us, every last word of it is true. Only people who have been there can really know what it is like.

      –Aine

  4. LLP permalink
    February 23, 2011 11:20 am

    Aine,

    SCI-FI…..well said!!

    I do feel that as well. I look forward to reading your book one day. Your writing style and personality are ingredients for a best seller!

    Thank you again for your sensitivity and sharing.

    Gina

  5. Inna permalink
    February 24, 2011 12:21 am

    Dear Aine,
    I have just read your whole blog, and it is the first time I feel like someone out there really knows what I am going through. Thank you so much for sharing your story! I am suffering a great deal right now… As if systemic candida and chronic constipation for the past 10 years were not enough, recently I was prescribed oral DMPS (not in carefully time- divided doses) while my amalgams were still in place. I broke out in horrible hives, stopped being able to digest anything and started thinking about suicide. Now, with the amalgams out, Andy’s book read and highlighted, a bunch of supplements already part of my routine, and about to start my chelation as soon as the DMSA arrives. I know that a long and difficult path is still ahead of me, but it feels AMAZING to know that someone else has made it to the other end. Thank you from the depths of my heart. I am looking forward to reading more of your blog and some day, your memoir.
    Inna.

  6. Beverly permalink
    April 12, 2012 7:10 pm

    Aine,
    I have just finished reading your book and was thrilled to see your recovery. I too have been sick for 16 years with this illness, just recently diagnosed in the last year. It is so comforting to finally know what is wrong with me and know that frequent dose has helped so many..with 15 rounds behind me I thank God that I stumbled across the Cutler protocol by accident on Amazon searching for mercury poisoning books. I have deep regret of the years I have lost and also the isolation of not “having a label” regarding this illness and also the isolation that mercury creates. It is nice to have The Frequent Dose Chelation group, I don’t know where I would be without them…If I could have one thing it would be to sit with these people in person one day to thank them for all they do.

    Beverly

    • April 13, 2012 10:28 am

      Beverly,
      I know exactly what you mean. Connecting with others who had mercury poisoning was one of the most important parts of my recovery. No matter how understanding your friends, family, doctors are, there is nothing like talking to someone who has lived this thing. They get it, like nobody else can. When things are rough, just knowing that someone has been through it too and come out the other side is such a comfort.
      Aine

  7. April 13, 2012 12:47 pm

    Aine,
    Have you ever been tested for the MTHFR gene mutation? It’s simple bloodwork, paid for by insurance. A lot of people with mercury poisoning are learning that their condition stems from this genetic mutation, causing a breakdown in the methylation pathway. It can be bypassed using methylfolate and MB12 (among other things), allowing the body to start detoxing on it’s own. Don’t get me wrong, I still think we need chelation and may always need to do a few rounds on a regular basis even when we are fully recovered, but the idea that we might be able to keep our daily toxic encounters moving out as they enter….that makes me VERY happy! These mutations are also linked to early heart disease, by way of increased homocystein and cancers. It is a good thing to know about yourself! It’s also genetic, meaning that it’s recommended for family members to be tested as well. My husband and I are going to get tested, because our children are positive. One son has two copies of the mutation (compound heterozygous) and the other has one, he’s just heterozygous. It’s likely passed down from either my hsuband or myself, or both. I just thought I might share this with you, in case it can connect more pieces of the puzzle for you. =) As always, I’m a fan of your work!

    • April 14, 2012 2:15 pm

      I’ve heard of this one, but I’ve never been tested for it…definitely worth looking into…Aine

  8. Simon permalink
    October 1, 2012 6:40 am

    I love you! Lol! (I’m a loose-cannon and a fun person ;D) I’ve bookmarked this page so I can share it with my family and friends. I believe some of them thought I was a bit off my rocker when I found this whole thing out and presented it to them earlier this month. I think this will help give them that,”Oh snap, this is what he was telling us and other people are experiencing it as well.”

    Plus it must coincide with what they were seeing of me, as I don’t hide my inner turmoil. I let it out in weird ways that I deem appropriate and that won’t hurt people around me, so I can prevent it from building up and exploding out. Eg. I say outlandish things quite often and do strange little dances and movements to make my physical ticks flow without appearing as though I have terets and my eye movements and facial expressions can be out of this world to outsiders. The whole world is like one big dream from some psychoactive animated film or something at times for me. It’s all over the place really.

    It sucks no one understands this stuff but hey it’s almost like underground conspiracy stuff meant to screw social connections from the inside out by wreaking havoc on your health from all angles. But I’m getting my fillings removed safely by holistic, homeopathic dentists soon and chelation shouldn’t be too hard as I am super fit and healthy aside from the whole toxicity thing. Plus I have many health resources readily available to me. I will proceed to read your blog and your book as well so I can be fully educated and spread the wealth that is this knowledge. Thank you Aine, you ARE making a real and powerful difference.

    • October 1, 2012 10:02 am

      Thanks, Simon! I hope your amalgam removal goes smoothly and that chelation is a breeze 🙂
      Aine

      • Stephanie permalink
        January 2, 2013 8:41 pm

        Hi my name is stephanie im 27 and im really sick I have two little kids and feel like im dying… Dont lknow where to start my husband thinks Im making it all up(symptoms) please help!!! Stephanie_b03@hotmail.com

      • January 2, 2013 10:05 pm

        Stephanie, are you on Facebook? There is a really good group called Mercury Detox Support Group that you can join to get advice. Also the Frequent Dose Chelation Yahoo Group is excellent: http://health.groups.yahoo.com/group/frequent-dose-chelation/
        Check them out, and good luck!

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